Monday, April 23, 2018

Assemblywoman Jenne: Resolution calls for April to be declared Parkinson's Disease Awareness Month in New York

Assemblywoman Addie A.E. Jenne, D-Theresa, announced that the Assembly passed a resolution she introduced calling on the governor to declare April Parkinson’s Disease Awareness Month in the state.

Assemblywoman Jenne also thanked members of Parkinson's Disease support groups around the state for their advocacy on behalf of those battling the affliction as well as their families.

"There are many people in our communities that are living with Parkinson's Disease. Like the group here with us today, Hope Soars, an advocacy group from the Albany area, there are many organizations throughout the state providing support and information to those suffering from Parkinson's Disease and their families," Assemblywoman Jenne said during remarks on the floor of the New York State Assembly.

"Their support and awareness building and work to try to move the ball forward in terms of research and a cure are very important to our future," she pointed out.

"We certainly want to raise awareness about this disease and let people know there is help available for those struggling families, struggling with this diagnosis," Assemblywoman Jenne added.

She said the disease affects the lives of many residents of St. Lawrence and Jefferson counties and around our entire state, with an estimated 42,000 people living with the disease throughout New York.

She said there are Parkinson's Disease support groups in the North Country, including ones based in Potsdam and Watertown.

"I had a chance to meet with leaders from the Potsdam group last year, and it was clear they were working diligently to increase awareness and offer support to those diagnosed with the disease," Assemblywoman Jenne said

She pointed out over 1 million Americans have been diagnosed with Parkinson's Disease and a new diagnosis is made every 9 minutes in the United States alone.

Parkinson's Disease is a chronic neurodegenerative disease characterized by motor problems including slowness of movement, rigidity and tremor.

Balance and gait problems may occur later in the course of illness. Common non-motor symptoms of PD include sleep problems, constipation, anxiety, depression, and fatigue. There currently is no cure.

Parkinson's Disease Awareness Month helps put a spotlight on the debilitating disease to help find better ways to prevent and detect the progressive neurological condition, providing effective care for the disease, and ultimately finding a cure.

Assemblywoman Jenne has sponsored this resolution each year since 2012.

For the third year, she welcomed members of the American Parkinson Disease Association (APDA) to Albany to be introduced on the floor of the Assembly and to be present for the passage of the resolution.

For more than 55 years, APDA has led the charge as the nation’s largest grassroots organization serving the needs of those touched by Parkinson’s by providing the support, education and research to help people impacted by Parkinson’s live life to the fullest.

“The work APDA is doing and the support they are providing for the Parkinson’s community in New York State and beyond is critical and I am thrilled to partner with them to bring much-needed attention to this disease,” Assemblywoman Jenne noted.

About the American Parkinson Disease Association: The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to assist the more than 1 million Americans with PD live life to the fullest in the face of this chronic, neurological disorder.

Founded in 1961, APDA has raised and invested more than $170 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of PD and ultimately put an end to this disease.

To learn more about the support APDA provides nationally through its network of chapters and information and referral (I&R) centers, as well as its national research program and Centers for Advanced Research, please visit www.apdaparkinson.org
IN THE PHOTOS:

TOP PHOTO:

Assemblywoman Addie A.E. Jenne (front row, second from left) poses for a photograph with representatives from the American Parkinson Disease Association at the state capitol. The state Assembly passed a resolution sponsored by Assemblywoman Jenne calling for April to be declared Parkinson’s Disease Awareness Month. Pictured (l-r) are Art Kilmer, Heather Kilmer, Cliff Hall, Assemblywoman Jenne, Mark Burek, Tom Stephany and Nick Scolaro. They are members of Hope Soars, an organization in the Albany area founded by Mr. Burek to help people living with Parkinson’s Disease.

BOTTOM PHOTOS:

Assemblywoman Addie A.E. Jenne greets members of Hope Soars, an advocacy group for those dealing with Parkinson's Disease, on the floor of the New York State Assembly.

Assemblywoman Addie A.E. Jenne visits with Mark Burek (l), founder of Hope Soars, and Cliff Hall (center) prior to the state Assembly passing a resolution asking the governor to declare April Parkinson's Disease Awareness Month in New York State.

Assemblywoman Addie A.E. Jenne and Assemblywoman Alicia Hyndman D-Queens) chat with members of Hope Soars, an advocacy group for those dealing with Parkinson's Disease.

Assemblywoman Addie A.E. Jenne visits with Gerald "Babe" LePage and Rick Geiser, members of the Parkinson's Disease support in Potsdam, at an event last year at the Massena Arena.